Category Archives: Heart Transplant

Offers and Dry Runs

If you see the Chihuly, you’re in the right place!

Offers:

UNOS United Network for Organ Sharing is the governing body for organ transplant and is contracted by the federal government to provide these services. They match donors with recipients based on many factors including, but not limited to, blood type, height, weight, and anti-bodies. When these criteria are met, the organization “offers” the organ to the transplanting institution who then does further evaluation. If the organ is acceptable to the transplanting institution it is then offered to the patient who has the final decision on whether to accept the organ or not.

Dry Run:

Once the “offer” is accepted the actual preparations and processes start for the actual transplant. During that time, many more tests and inspections are done on the organ and patient. Many times though, in the end, the heart is rejected. Sometimes they even get up to the point of making the first incision. That is considered a dry run.

Jean has already had two offers. One was last minute because it was turned down by someone else and didn’t allow enough time for the the transplant team to evaluate before it was too late to be used. The other offer happened last night. Turned out the match wasn’t close enough and it went to someone else.

Mailing Address

Flowers and/or live plants are not allowed in Gabriel House

Gabriel House of Care
Leonard & Jean Caton room 103
4599 Worrall Way
Jacksonville, Florida 32224

Week One

Greetings All!

We’ve decided to resurrect the blog and use it as a way to keep folks up to date on what’s going on with my heart transplant journey.

I was admitted to Mayo Clinic, Jacksonville on Wednesday, September 17th to prepare and wait for a new heart.
The floor I’m on (11th) opened May this year and the rooms are more like a luxury resort hotel than a hospital. The 100 inch TV and floor to ceiling glass wall make it much more comfortable than a normal hospital. This will go a long way and making my 2 month minimum stay much more pleasant.

I’ve met about 6 other pre-transplant pts and one guy who is 2 weeks post transplant. We sit and play cards in the afternoon and the nurses come to us to give meds or get blood. We’re quite a sight, everyone has their IV pole and multiple drugs going. The Drs and nurses are extremely accommodating to making us as comfortable as we can be for this long journey. One girl has been here nearly 4 months waiting for a heart.

Medical Details (for those interested):
After two tries at putting a pic line in my arms, they ended up tunneling in through my chest. Very painful.
Next they tried me on what they call “rocket fuel”. Real name, Milrinone. This IV drug is used to increase heart function. Unfortunately, for me, it triggered ventricular tachycardia, worsening heart failure and chest pain. After two days that drug was discontinued. It also caused a lot of my other lab work to go out of whack. They are still trying to sort that out and I’m starting to feel my old self. We’ll keep you updated as things change.