Still waiting…..

Much as I would like to be writing this ‘from the other side’, meaning post transplant, that is unfortunately not the case. Here I sit joined by other transplant patients who have been waiting even longer. The Dr’s offer encouraging words and expect it to be ‘any day now’. We did have a very encouraging event last week when a patient, who was waiting for 6 months for a simultaneous heart and liver transplant, finally got the call. After being sick for so long he was sitting in a chair the day after surgery and is now walking the long hallway we have here, unaided. He’s an inspiration to all.

We have a close group here and are routinely visited by some of the recent post transplant patients who must remain close by for 3 months. We had a fun afternoon when 3 of them showed up with snacks and we played cards. It’s been great to get to know them and follow their progress and to be able to ask them any questions we want about what our paths will look like post transplant.

Here’s a fun picture of 3 recent post transplants and 3 pre transplant. My new family. (We have to make sure not to make them laugh as their chests are still sore!!!)

Thanks so much for all the beautiful cards and visits and words of encouragement. It means the world to us both. I will probably request no visitors after I have surgery as my immune system will be non-existent and no treats as I will probably be diabetic. Miss you all!!!!